She reached into her diaper-bag and pulled out a fresh diaper and was holding something with a thin rubber strap attached. She grinned at me, then looked back at CJ, “Does CJ want Daddy to change his diaper?”My son started giggling, “Daddy do, Daddy do!”Talk about getting set up! When I started over that way Mary showed me what she had.It was swimmers nose plugs that competitive divers used. Linda had found them when she had helped her mom clean out Jessica’s old room. All the girls were laughing as Mary put them on me, then told me it was my turn.Dayum! So much for getting any more sympathy. I do have to say, it was much better than smelling CJ’s toxic waste. CJ was giggling the second I had his bottom cleaned up and powdered. I even remembered to wait for him to pee. I chuckled when after his sprinkle I asked, grinning at him, “CJ go pee-pee?”He mentally echoed, “Pee-pee, hee-hee pee-pee.”The way he giggled drew an “awe” out of everyone.It struck me, that while we heard his. I mean really sick; in fact, I’m dying.”“Oh Lisa, what’s wrong? How can I help?”“I’ve been diagnosed with ALS. In fact, a very nasty variant form of ALS. Respiratory Onset ALS only accounts for 3% of all the cases of the disease and is more commonly found in males; I guess I’m just lucky. I’ve known about it for several months. At first I couldn’t believe it. There were no symptoms, just the blood test results. I thought it was a mistake, but a second test came back positive for the disease. My doctor said that the symptoms would start showing themselves in the very near future and once they did, their progression would be quick. The median survival rate is less than a year and a half. I’ve begun to show signs of the disease, and before it incapacitates me I want to get my life in order.”“Oh Lisa, I’m so sorry for you; how can I help?”“Please, let me explain everything before you agree. I’m going to be asking a lot of you.“First, there’s Gene to consider. I want you to continue being.
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